"We have been at the Jeff Gordons Childrens hospital for eight days now. The first couple days we got the good news that she seemed to be responding very well to the new medicine that she was put on a month ago. It doesn't appear that she is having any seizures we are missing while on the medicine. We took her off all her medications last thursday and have been patiently waiting for a seizure ever since. Her brain activity is very abnormal and Dr. Bailey says every day that she goes without a seizure surprises him. We have sleep deprived her twice and will do so again tonight. That means she gets to sleep from 1 a.m. to 4 a.m. and then has to stay awake until the next afternoon! Still no seizures, so we wait.
They have decided to let us go home thursday (Day 10) either way since she seems to be responding well to the medicine. If at any time she starts having seizures again they will readmit us immediately and wait for a seizure so they can do the needed testing to see if she is a good candidate for epilepsy surgery. We are still hoping that today or tomorrow she will have one so they have the information and can begin the proper evaluation process showing her data to the epilepsy committee. This Committee consists of epileptologists, neurologists, neurosurgeons & nurses. They all look at the information, discuss it & come up with her best options and if they think they could do successful surgery.
The good news is that Aubrey will be able to start kindergarten! They start tomorrow so she will have to wait a week to make sure her medicine is back in her system, but we are very thankful she gets to do that!
She has been a trooper. She has endured the needles and being confined to her room as well as many other uncomfortable things, However I actually think she has enjoyed the attention. We are so grateful to all of you who have stood with us and supported us throughout this. Without you and the Lord there is no way we would be standing so strong. We are so blessed! Love you all!"
~ Hannah~
